Welcome to the Stress-Free IEP® podcast, hosted by Frances Shefter, CEO and attorney of Shefter Law. This podcast supports parents and educators dealing with Individualized Education Programs (IEPs). More details and past episodes are available at Shefter Law.
Meet Mary Shouse: Occupational Therapist Specializing in Tourette Syndrome
Today’s guest is Mary Shouse, an occupational therapist specializing in Tourette Syndrome and other tic disorders. She is the founder of Help for Tics and author of “Breaking the Tic Cycle.” Mary combines the sensory system with behavioral therapy to help clients manage their tics and live their best lives.
Understanding Tourette Syndrome and Its Prevalence
Tourette Syndrome is more common than most people realize. Up to 20 percent of children ages 6 to 17 experience tics, with many being transient. However, one in 162 children has Tourette Syndrome, often undiagnosed or misdiagnosed. Tourette often coexists with ADHD and OCD, forming the Tourette triad. Tourette Syndrome is a neurological disorder characterized by repetitive, involuntary movements and vocalizations called tics, often beginning in childhood.
Navigating School and IEPs for Children with Tourette
Parents usually notice their child’s repetitive behaviors and consult pediatricians, who may refer them to a neurologist or movement disorder specialist. Early identification and intervention are key to managing Tourette Syndrome effectively. Teachers and school staff play a vital role in supporting students. Tics can wax and wane, and students may suppress them during school hours, leading to a release of tics at home. Suppression can take up significant mental bandwidth, impacting learning.
Qualifying for an IEP or 504 Plan
Qualifying for an IEP or 504 plan can be challenging due to the waxing and waning nature of tics. Demonstrating educational impact is crucial. Even if a child masks their tics at school, this often means they are not fully available for learning.
Empowering Parents and Children
Parents should educate themselves about their child’s condition, communicate regularly with the IEP team, and give themselves grace. Teachers should establish communication with parents and understand that behaviors associated with Tourette Syndrome are not deliberate.
Behavioral Therapy for Tics
Comprehensive Behavioral Intervention for Tics (CBIT)
CBIT is a behavioral therapy combining awareness training, sensory integration, and functional adjustments. It teaches individuals to recognize the urge to tic and use alternative behaviors to reduce the tic’s intensity, empowering them to manage their tics effectively.
Finding Support and Resources
Connecting with a community and support network is crucial. Whether through local Tourette Association chapters or online groups, connecting with others who understand the condition can provide valuable support. The Tourette Association website provides a directory of qualified professionals.
Conclusion
Mary’s insights highlight the importance of understanding, managing, and supporting individuals with Tourette Syndrome. With proper education, communication, and therapeutic interventions, individuals with Tourette Syndrome can thrive and lead fulfilling lives. For more information, visit Help for Tics. Mary’s book, “Breaking the Tic Cycle,” is also available for practical solutions.
FAQs
How can parents identify if their child has Tourette Syndrome?
Look for repetitive behaviors and consult a pediatrician. If tics persist, a referral to a neurologist may be necessary.
What are the common co-occurring conditions with Tourette Syndrome?
Tourette Syndrome often coexists with ADHD and OCD.
How can teachers support students with Tourette Syndrome?
Understand the nature of tics, establish open communication with parents, and implement appropriate accommodations.
What is Comprehensive Behavioral Intervention for Tics (CBIT)?
CBIT is a behavioral therapy that helps individuals manage their tics through awareness training, sensory integration, and functional adjustments.
How can individuals with Tourette Syndrome find support?
Connect with the Tourette Association, join support groups, and seek professional help from qualified therapists.
Visit Tourette Association of America’s website for more information and resources: https://tourette.org
Frances Shefter is an Education Attorney and Advocate who is committed to helping her clients have a Stress-Free IEP® experience. In each podcast, Frances interviews inspiring people to share information, educate you, empower you and help you get the knowledge you need.
Understanding and Managing Tourette Syndrome with Mary Shouse
Stress-Free IEP® with Frances Shefter, Episode 60
Introduction to Stress-Free IEP®
Welcome to the Stress-Free IEP® podcast, hosted by Frances Shefter, CEO and attorney of Shefter Law. This podcast supports parents and educators dealing with Individualized Education Programs (IEPs). More details and past episodes are available at Shefter Law.
Meet Mary Shouse: Occupational Therapist Specializing in Tourette Syndrome
Today’s guest is Mary Shouse, an occupational therapist specializing in Tourette Syndrome and other tic disorders. She is the founder of Help for Tics and author of “Breaking the Tic Cycle.” Mary combines the sensory system with behavioral therapy to help clients manage their tics and live their best lives.
Understanding Tourette Syndrome and Its Prevalence
Tourette Syndrome is more common than most people realize. Up to 20 percent of children ages 6 to 17 experience tics, with many being transient. However, one in 162 children has Tourette Syndrome, often undiagnosed or misdiagnosed. Tourette often coexists with ADHD and OCD, forming the Tourette triad. Tourette Syndrome is a neurological disorder characterized by repetitive, involuntary movements and vocalizations called tics, often beginning in childhood.
Navigating School and IEPs for Children with Tourette
Parents usually notice their child’s repetitive behaviors and consult pediatricians, who may refer them to a neurologist or movement disorder specialist. Early identification and intervention are key to managing Tourette Syndrome effectively. Teachers and school staff play a vital role in supporting students. Tics can wax and wane, and students may suppress them during school hours, leading to a release of tics at home. Suppression can take up significant mental bandwidth, impacting learning.
Qualifying for an IEP or 504 Plan
Qualifying for an IEP or 504 plan can be challenging due to the waxing and waning nature of tics. Demonstrating educational impact is crucial. Even if a child masks their tics at school, this often means they are not fully available for learning.
Empowering Parents and Children
Parents should educate themselves about their child’s condition, communicate regularly with the IEP team, and give themselves grace. Teachers should establish communication with parents and understand that behaviors associated with Tourette Syndrome are not deliberate.
Behavioral Therapy for Tics
Comprehensive Behavioral Intervention for Tics (CBIT)
CBIT is a behavioral therapy combining awareness training, sensory integration, and functional adjustments. It teaches individuals to recognize the urge to tic and use alternative behaviors to reduce the tic’s intensity, empowering them to manage their tics effectively.
Finding Support and Resources
Connecting with a community and support network is crucial. Whether through local Tourette Association chapters or online groups, connecting with others who understand the condition can provide valuable support. The Tourette Association website provides a directory of qualified professionals.
Conclusion
Mary’s insights highlight the importance of understanding, managing, and supporting individuals with Tourette Syndrome. With proper education, communication, and therapeutic interventions, individuals with Tourette Syndrome can thrive and lead fulfilling lives. For more information, visit Help for Tics. Mary’s book, “Breaking the Tic Cycle,” is also available for practical solutions.
FAQs
How can parents identify if their child has Tourette Syndrome?
Look for repetitive behaviors and consult a pediatrician. If tics persist, a referral to a neurologist may be necessary.
What are the common co-occurring conditions with Tourette Syndrome?
Tourette Syndrome often coexists with ADHD and OCD.
How can teachers support students with Tourette Syndrome?
Understand the nature of tics, establish open communication with parents, and implement appropriate accommodations.
What is Comprehensive Behavioral Intervention for Tics (CBIT)?
CBIT is a behavioral therapy that helps individuals manage their tics through awareness training, sensory integration, and functional adjustments.
How can individuals with Tourette Syndrome find support?
Connect with the Tourette Association, join support groups, and seek professional help from qualified therapists.
Visit Tourette Association of America’s website for more information and resources: https://tourette.org
Learn more about Mary Shouse:
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Stress-Free IEP®:
Frances Shefter is an Education Attorney and Advocate who is committed to helping her clients have a Stress-Free IEP® experience. In each podcast, Frances interviews inspiring people to share information, educate you, empower you and help you get the knowledge you need.
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Connect and learn more from your host, Frances Shefter:
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